Craniopharyngioma

A blog about Conner's craniopharyngioma, which is a benign, slow growing brain tumor that grows close to the pituitary.

Monday, June 06, 2005

Good Weekend

Conner's mother, my ex-wife, had taken Conner into the emergency room twice last week for his headaches. Very worrying.

This past weekend, Conner felt ok on Friday night, then Saturday morning he got a headache around 8 AM, and I gave him the Tylenol 3 that the ER doctor prescribed and he slept for 3 1/2 hours. Then again, around 2:30 PM, he complained of more headache pain, and I made him lie down, gave him more Tylenol 3, and he slept for another 2 1/2 hours. After that he was fine Saturday night and Sunday until he went back to his mother's household.

Given that Conner had an exhausting week, he obviously needed the sleep.

His tumor hasn't changed in the week he was diagnosed, so why all of a sudden have his headaches gotten more severe? My opinion is that he's kind of scared now, and it's very stressful and frightening to have this going on all of a sudden.

So, he's been gone one day, and already has racked up another ER visit at Lapeer Regional. Poor kid.

I don't know what to think.

4 Comments:

  • At 8:58 AM, Anonymous Anonymous said…

    Hello, as a fellow craniopharyngioma parent, I want to caution you about the severity and seriousness of Conner's symptoms. All fears set aside, your little boy will be in the hospital very soon, to relieve these headaches, the tumor has to come out. Until then, the headaches are symptoms of a very dangerous condition and Conner is going to be sleepy and more fatigued than the normal child. Please allow Conner his symptoms, they are very real.

     
  • At 9:05 AM, Blogger Shaf said…

    Thank you for your comment. Consider this venting some frustration that has nowhere else to go. I know these symptoms are very real, and I am very concerned and frustrated with them.

    Once again, I appreciate your feedback.

     
  • At 5:58 PM, Anonymous Anonymous said…

    PLEASE try the magnesium supplement as they may help with headaches ***** as discussed on the cranio support list
    even if it is due to the tumor, the magnesium should help to relax the blood vessels and pressure. its worth a try. it sure helps me i cant live without it

     
  • At 8:29 PM, Anonymous Anonymous said…

    My son is 6 1/2 and was diagnosed two years ago. His tumor was not removed. It received radiationin March of 2004 and has not grown any. Right now he has a large cyst that we are watching. Our son's headaches come and go quickly. They can be very painful. We give our son Motrin and he will lay down. He will often cry and it is always scarey for everyone! Our son sleeps a lot more in comparison to our other son. He has to have extra rest....Good luck and I wish you guys the best on Monday.

     

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